we are a community
The Down Syndrome Association of Central Texas (DSACT) would like for you to know that you are not alone. As parents, we understand how difficult it is to hear the unexpected news that your baby might have Down syndrome. We offer a safe place to turn to where you can share your feelings and fears with people who have been there. We will reach out to you with compassion and care and will not judge.
There is no right or wrong way to react to a diagnosis. You may experience intense emotions at first: shock, dismay, fear, or anger. These emotions are perfectly normal - as are many more.
Some families decide that raising a child with Down syndrome is not right for them. A wonderful resource is the National Down Syndrome Adoption Network.
Other expectant parents are sad at first, but they make plans to welcome the baby into their lives by gathering information and making adjustments during the pregnancy so that the birth will be a joyous occasion.
Wherever you find yourself at this moment, please know that we care, we will meet you where you are, and we commit to do our best to meet your needs for accurate information and support.
Our experienced parent liaisons can answer your questions and provide a realistic picture of raising a child with Down syndrome. We are available to visit in person, by voice or text, or by email - no matter what your decision on your pregnancy or birth plan.
We provide excellent information packets. The DSACT new parent packet is available at the right side of this page.
Our Baby Talk program is a social group for families with a prenatal diagnosis or children up to age 2 years old. This group gathers about once per month for a fun, family-friendly activity. (Please note these group meetups are great ways to engage with other families who have a young children with Down syndrome. If you are experiencing grief and anger, this group may not be the best place for you right now; however, we can connect you individually with a New Parent Coordinator and support you in other ways.)
If you are interested in talking to another parent, please call us at (512) 323-0808. You can also access our New Parent Program brochure below.
As a parent, your child's health is always at top of mind. See our Health Care page for more on this topic, but here are two important resources specifically for new parents:
Helpful Resources
10 Books About Down syndrome Recommended by Experts, Parents, and Caregivers
American Academy of Pediatrics: “Health Care Information for Families of Children with Down Syndrome”
Diagnosis to Delivery: A Pregnant Mother's Guide to Down Syndrome
Texas Department of State Health Services: Information About Down Syndrome for New and Expectant Parents
Learn more about Down syndrome using this free iTunes app from the University of Kentucky